“So, if we have a baby, do you think you could work fewer hours?”
“Doesn't matter. He's gonna be so cute, I'm gonna eat him up on the first day.”
--Lily & Marshall, How I Met Your Mother
How true. Sometimes I come very close to eating him up! Of course, we avoid kissing fingers and toes since babies are likely to put those body parts in their mouths. But this whole childrearing thing, while extremely challenging, is even more rewarding, even at this early stage – we are finally getting some real smiles! And I’m not talking the I’m-in-a-state-of-hazy-dreamy-sleep smile, but the smiles that come as a reaction to our smiles, to baby talk, to a little tickle. I read that babies tend to smile at about 6-8 weeks, and Calder is now about 7 weeks adjusted, so he’s right on cue. Of course, catching one of those elusive smiles on camera might take some time - he moves from one mood to the next in a hot second!
At this point, we’ve almost been through our first round of doctor appointments and then some (minus the physiatrist – that one is coming up.)
Understanding the “master plan” for Calder’s progress is a little funny, though, since no one doctor is directing this show. I think part of it is that none of these doctors know Calder as fully as those in the NICU did. Whatever the reason, it can create some uncertainty for us, as we may have three doctors asking us when his next swallow study is scheduled but no one scheduling it (although we do have our own opinion on when it should be scheduled, and that’s sooner rather than later!)
|second snow (missed the first!)|
The G-tube, well, that one is another story. Total disaster area. Whereas it was once so beautiful, as our NICU nurse Laura put it, in the time between when we saw the pediatrician for the first time and the time our G-tube clinic appointment came around, the granuloma turned into something too solid to treat now. We’ll have to wait until they do the surgery to remove the tube, which will be AT LEAST a year down the road. For the tissue that continues to form, though, we will treat it with silver nitrate, this crazy substance that pretty much burns the skin into dissolution. The parts we treat are grey and yucky for a few days until they fall off. And that photo I am NOT going to post. There was also some concern that he had an infection at the insertion site, so we have had him on antibiotics for a week. The site seems to have improved, with the redness that remains being chalked up to irritation from the mickey itself. The dietician at the office told us to slowly increase his feeds by 5 mls a feed each week, to continue mixing it with formula, and to eventually use a pump because the amount of each feed will be so large that gravity alone won’t cut it – we’d be there all day.
Then there’s the ophthalmologist; the story of the logistics on this one can come later. But long story short, Calder has a little ROP left in one eye, but at his age, it shouldn’t get worse.