There aren’t really words to describe how blessed I feel to have our baby home, that he survived, some might say against the odds. As a preemie mom seeking guidance in various ways, I’m always trolling listservs, websites and Facebook pages that have sprung up to support parents in our situation (and what a community it is!) Along the way I have discovered countless inspiring stories, many much like our own, but all unique. And sometimes, the parents have to be strong for much different reasons. While I know challenges lay ahead, I am so thankful that we get to hug and squeeze our little man today.
Because of Calder’s lack of an immune system -- which I know I’ve mentioned already a thousand times, but hey, it’s a big deal -- not to mention the logistics of traveling with a G-tube-fed baby and a mom who spends half her life pumping … we stayed home.
On a more medical note, the appointment with the physiatrist was very positive. Calder loves new faces so squirmed happily on the table as the nurse practitioner and doctor took their turns with him. While they certainly cannot rule out certain conditions that may present themselves later in life, both were very satisfied with his behavior and growth and were optimistic about the future. In fact, we don’t have to go back for another visit for three months.
Calder is now super active, at least as active as a non-mobile baby could possibly be, and one of his favorite places to have fun is on his changing table, right after his bath. As evidenced below.
Right now, the child can all asleep sitting up. For his sake, I hope he maintains that capability.